Join Us for Noah's Night of Hope.... A Gala to Support Cure SMA
Date: Saturday, October 4, 2025
Time: 6:30-9:30 PM
Location: 429 Main, on Main Street in Rochester
Formal Attire
For questions call Dawn Norton on 248-320-3340
Noah's Story
Noah Petras was born on November 8, 2021. He was a healthy baby boy in every way. The next day, however, his family learned that he had Spinal Muscular Atrophy, a rare genetic disease that causes progressive muscular weakness. With his diagnosis, it was unlikely that Noah would ever stand or sit on his own and may require assistance to breathe and eat. It was devastating news.
Cure SMA Changed Noah's Life
Through the outstanding efforts of Cure SMA, Noah's life has been very different than his original diagnosis. Within a week, the organization reached out to the family to provide help and information. Due to efforts of Cure SMA, testing was now being done in Michigan and all 50 states to identify the disease early. The foundational research that had been sponsored by Cure SMA had led to the availability of three ground-breaking FDA approved treatments for SMA. Noah received one within three weeks of birth, and miraculously, has remained symptom free!
The Future is Bright, but more work is needed
Through the work of Cure SMA, this disease is no longer the #1 genetic cause of infant death. Testing is being conducted in all 50 states at birth, and three treatments are in place. Despite progress, there is still no cure for SMA, and many children & adults continue to experience symptoms and muscular weakness.
Cure SMA Mission
- Advancing groundbreaking research
- Supporting individuals and families
- Fueling advocacy and awareness
- Cure SMA is committed to improving the lives of those with SMA. Your support can make a huge impact on achieving this mission. Please join us! All proceeds will go to Cure SMA.